Rocco's story

Rocco's Story from Mom

    Rocco Cole Kuehl was born January 7th 2009. 

He was a happy, healthy baby boy. His sister Lacy just loved being a big sister and would  want to do everything she could to look after him, feed him, change is diapers, bathe him, read to him but most of all she loved him with all her heart, we all did. 

One evening shortly after Rocco had celebrated his 1st Birthday we noticed that his breathing had changed and he seemed to be more tired than usual. I took him to a walk in clinic the next morning, I told them I was concerned about his breathing and how lethargic he was. They told me he had a virus and that if he didn’t improve in a day or two I should take him to his Pediatrician (during his examination Rocco slept the whole time). Rocco slept most of the day, he didn’t have a fever? So why was he so tired? 

That evening I took him to the ER. 4 Hours later he was Diagnosed with Type 1 Diabetes and was in DKA ( Diabetic Ketoacidosis ). Rocco was critical. Sunday while in the NICU he started having Seizures (caused by swelling in his brain) shortly after that while in the CT room Rocco had another Seizure. We watched as they tried to save our son. 

He was taken to St Pete All Children’s Hospital. At approx 3am Monday 25th January we were told our son was in a coma and that he was brain dead. Tests proved the doctors to be correct and we had to make the hardest decision in our lives, to turn off the machines that were keeping him alive. I held my son in my arms for the last time and told him how much we loved him. I held him close and tight until his little heart stopped beating. I didn’t want to let him go. That moment will stay with us forever. No parent should ever have to lose a child, and we believe that if  we had known the signs and symptoms of Type 1 Diabetes Rocco  would have been diagnosed  sooner and correctly. He would still be here with us today. 

We don’t ever want this to happen to another family. Knowledge is power. Knowing the Symptoms of Type 1 Diabetes can save a life. Please help us spread the Awareness of Type 1 Diabetes and the Sudden Onset of DKA. It could help save the life of another child. Thank you for your support. 

Rocco's Story

Tony Modica Interviews Lacy at the Inverness Grand Prix 2017

Drive For Diabetes Awareness, Inc

Our Mission

Drive for Diabetes Awareness, Inc


  • It shall be the mission of this  corporation to create public awareness of the need for diabetes screening, particularly of young children, and to distribute information by pamphlets and similar communications at sporting events and otherwise to inform the public about the symptoms of diabetes and dangers of the unknown or untreated diabetes for the support for those dealing with a diagnosis of , or research related to, juvenile diabetes such as by promoting the slogan : "Check Don't Guess"