Brooklyn is Critical 779 Blood Glucose
Rocco is Lacy's brother and Hero, he shall live on forever in our hearts and forever with DFDA as the face of this Charity
Lacy Kuehl loves helping others
Addie Parker has saved over 40 lives with donating her organs. Addie has inspired us to do the same and become an organ donor for LIFE. #THXSDD
Paisley is an 8-year-old in 2nd grade. All around healthy and active girl. Never needed much of anything.
One morning she had the “sick eyes.” I could tell she needed rest. It was flu season and I was hoping it wasn’t flu or strep. That morning I took her to a local doctor and was honestly hoping it was one of the two so we could fix the sickness and move on. She tested negative for both. They said to have her rest, drink water, and gave me some nauseous medicine (even though she wasn’t feeling too sick at the time).
Paisley slept for literally 23 out of 24 following hours. Breathing loud and all she would say was her throat hurt and she was super thirsty. No fever, no other symptoms that I could recall. I called them back the next day asking if they could test for mono because she has slept for 23 hours. They said she was fine and it was normal to sleep a lot. I knew something in my heart wasn’t normal. I took her to the Hospital ER. They retested her, pricked her finger, and ran a scan on her throat. 20 minutes, they said she was Type 1 Diabetic and she was going to be air flighted to Children’s hospital in Dallas, Texas. Not long after the news, she woke up and began to choke, it was like she couldn’t breathe. She was completely out of it at this point. The doctors came in, made a decision to intubate her just so she doesn’t choke anymore. Had some issues with the right size tube for her throat. She threw up and aspirated. Children’s showed up not long after this traumatic and traumatizing scene, got her stable and we were headed to the jet for Children’s.
At children’s they waiting for her to wake up from sedation, checked vitals, everything seemed excellent beside her oxygen levels. They just weren’t at full potential and the doctor didn’t feel content with it. Something wasn’t right. Within the next two hours, her oxygen dropped and they re-intubated her again for a second time. By that point, her lungs were working so hard they were going to pop, her heart was working so hard it was struggling. They lost Paisley for 3 minutes. It was the most terrifying thing I ever saw... yes, I saw. The nurse called me over I guess to witness them doing chest compressions on my baby girl. It was and is something that will haunt me forever. Thankfully, after 3 minutes she was back! It was unreal. I was listening and signing papers for them to do whatever they could to save her life, which was life support also known as ECMO. They had the machine hooked up for her lungs and another one for her heart. She needed rest. Her lungs and heart needed rest. The next 24 hours were crucial. We needed to see the heart start to do its job. It did.
Her lungs were completely whited out. They had so much infection you couldn’t even tell what it was. After two days, her lungs started to clear. It was amazing at what they were seeing so quickly. They said it could be months she would be on ECMO. It only ended up being 7 days.
Paisley endured many things:
- parainfluenza infection
- cardiopulmonary arrest
- septic shock
-acute respiratory failure
-adult respiratory failure
She is a lucky girl. She was in the hospital for 14 days. She never looked back. Begin to heal mentally and physically. We went to the neurologist and there were no signs of a stroke or any brain damage. She is a living miracle. The doctor was completely amazed.
She has adapted to her new lifestyle with Type 1 very well. It’s hard being different. It’s hard getting shots 5 times a day. It’s hard wearing weird things on your body for people to look at. We had no idea. We had NO idea. We’ve learned so much. We want others to learn and be aware.
Thank you for reading her story. We are blessed. We are thankful to have the support we’ve had, and we are lucky to have our 8-year-old back. We know not so others are that lucky and it breaks our heart. It is so hard to comprehend. Thank you,
Education is Knowledge and knowledge is power. Knowing the symptoms of Type 1 Diabetes will save a lives.
"Check Don't Guess"
Sometime around early May of 2019 I noticed something was off with Grayson. He had started to lose weight, He had lost 19lbs and seemed thirsty all the time and started urinating more frequently-especially through the night. When I expressed my concerns to others that I was scared it may be Type 1 Diabetes. Most people assumed he was having a growth spurt and/or growing pains and that it was the reason for the weight loss. Some days he was OK Other times he was cranky and lethargic.
By the middle of May, he had gotten worse. When he would get home from school in the afternoon he would go straight to bed and go to sleep. His appetite had decreased and my once " Happy go lucky child that was constantly singing, dancing and cracking Jokes barely had the energy to smile.
On May 18th, I asked my mom ( who is a Diabetic herself ) to check his blood sugar when we stopped by. It was 330 and he hadn't eaten at all that morning. We headed straight to St Josephs Children Hospital but even then it was hard to grasp the idea that my 8-year son may be diabetic too.
It didn't take them long to confirm my worst fear, Grayson was a Type 1 Diabetic and he was in DKA (Diabetic Ketoacidosis). Grayson was admitted into the ICU right away. We spent one night in the ICU - no eating or drinking before his levels started improving. Grayson was discharged after spending two nights in the hospital and within 24 hours he was getting back to the old Grayson I had been missing.
It's only been 4 weeks since Grayson's diagnosis and he is now checking his own blood sugar 5-7 times a day and giving himself insulin injections at least 4 times a day. We are still learning how to adjust and adapt to our new daily life. Some days are better than others for sure but I know we are incredibly lucky to have caught it when we did before Grayson's condition got any worse. We know a cure would not have saved his life as ones need to be diagnosis first. We need diabetes awareness and thank Drive for Diabetes Awareness, inc for what they do to warn others and to share these stories. No parent should lose a child to Diabetes. It's preventable.
Mom, Brittany Harrelson
By supporting Drive for Diabetes Awareness, you play a pivotal role in helping diabetes awareness that helps, prevents, supports and ultimately educates others about diabetes and its complications. There are many ways you can help! Drive for Diabetes Awareness, INC is a 501 (c) (3) non-profit. All donations are tax deductible to the full extent of the law. Copyright © 2016 Drive for Diabetes Awareness, INC - All Rights Reserved.